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  #1  
Old 04-22-2009, 03:34 PM
Kallie'smom's Avatar
Kallie'smom Kallie'smom is offline
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Default Hello, I am new here, Kallie just diagnosed

Hello to all,

I have never done this before so bear with me. My name is Tammy and my almost 14 year old 9 pound mini dachshund Kallie will be starting treatment on Saturday. (My vet likes to start on Saturdays so it gives an extra day during the week in case it takes a little longer to load.) She has the pituitary tumor. I dont have any of the test results because I did all that before I found this site and didnt think to ask for it. She first had a ACTH Low Dose test, then the ACTH Endogenous test. I guess her tests came out kind of odd so he consulted with the lab to diagnose her. I might be able to get a copy when I pick up her meds. I learned sooooo much from all of you, he seemed surprised that he didnt have to explaiin it all to me. He is even having me just pick up the medicine without a visit, he must have confidence that I know what I am doing. This is making me nervous because he is giving me lysodren (or mitotane) in a gel or liquid form? I haven't picked it up yet, so I don't know the dosing yet. The vet assistant who called me thought it was 1ml. I haven't heard anyone mention this on the forum and wondering if anyone has used this before. I was all studied up on the tablets and then this thru me for a loop.

I did print out the Lysodren loading instructions so I feel fairly comfortable with what to watch for.

Thanks so much,

Tammy and Kallie
  #2  
Old 04-22-2009, 04:30 PM
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Rusty's Mom Rusty's Mom is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Tammy and Kallie,

Welcome to the site. Soon you'll be hearing from a few who really understand the disease and symptoms. This is a great support site. You'll be glad you did the posting.

I just put Rusty down 3 weeks ago. I had only started on this site 2 weeks prior to his passing, so I'm not a wealth of info, but I surely wanted to give you some support.

Blessings and best of luck,

MJ
  #3  
Old 04-22-2009, 04:46 PM
frijole frijole is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Hi! I'm a lysodren mom and my Haley has been on it for almost 3 yrs now. I've never used the gel/liquid version so I can't help you with that. Glad you have the loading instructions book.

I recommend you start monitoring the water intake now so you can track to see if it is reduced. I also watched my dog eat so I could look for changes. I also logged it daily along with any comments throughout the loading process so I could accurately recall things.

Can you share with us your dogs' weight and the daily dosing amount that is being prescribed? I sure wish you had the test results. Did they do the acth test? That is your baseline/starting point as you work your way to a goal of 1 to 5.

Keep us posted! Good luck - you will be just fine.

Kim
  #4  
Old 05-19-2009, 02:59 PM
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4Mikeydog 4Mikeydog is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Dear Tammy,

I am so sorry for your loss. I just finished reading your thread and I am at a loss for words as well.
There is no way to express the depth of one's feelings at a time like this....I wish you peace, comfort, and beautiful memories of your beloved Kallie.

with love,
Dorothy and Mikey
  #5  
Old 05-19-2009, 03:46 PM
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BestBuddy BestBuddy is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Tammy,
None of us own our dogs we just get them for a while on loan but boy do we wish it was longer. I am so sorry it was Kallies time to go. You are in my thoughts and prayers.
Godspeed Kallie
Jenny
  #6  
Old 05-19-2009, 05:19 PM
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Default Re: Hello, I am new here, Kallie just diagnosed

Tammy...

I was able to read to keep up this afternoon but not post. I came to see how you made out at the vet and my heart just sank.

I am so very sorry....you did such a wonderful job with Kallie during this whole thing. She was so blessed to have you...as I know you feel about her. You did everything right, everything you could...sometimes, for whatever reason and I am still trying to figure out why , love can't save those we love....and if it could, I know you would.

Kallie will always be with you....deep safe within your heart. That's where I keep my Scoobie. I wish you both peace...and I want you to know that I think you did more than all the right things by her.

Lots of hugs, Beth, Bailey and always Scoobie
  #7  
Old 05-19-2009, 06:44 PM
frijole frijole is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Tammy

Sorry, I read your thread earlier and it just hit me hard... I couldn't post. I am so very sorry to hear this. I know this is sudden and certainly has to be hard for you. Please know that we are here for you. When you are up to it, let us know how you are doing. Rest in peace dear Kallie.

Kim
  #8  
Old 04-22-2009, 05:10 PM
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Lulusmom Lulusmom is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Hi Tammy and welcome to you and Kallie.

I lose my place a lot so in order to make things easier for myself, I've placed my comments in blue into the body of your post. This makes more sense for me and anybody else that get addled easily.

Quote:
Originally Posted by Kallie'smom View Post
I have never done this before so bear with me. My name is Tammy and my almost 14 year old 9 pound mini dachshund Kallie will be starting treatment on Saturday. (My vet likes to start on Saturdays so it gives an extra day during the week in case it takes a little longer to load.)

Your vet is a wise man. The vast majority of dogs will load in 5 to 8 days so starting on a Saturday or Sunday does give you a bit of insurance that your vet will be in the office when you to get Kallie there.

She has the pituitary tumor. I dont have any of the test results because I did all that before I found this site and didnt think to ask for it. She first had a ACTH Low Dose test, then the ACTH Endogenous test. I guess her tests came out kind of odd so he consulted with the lab to diagnose her. I might be able to get a copy when I pick up her meds.

Please do get copies of all of Kallie's test results and post them here. The more information you can give us, the easier it is to put all the pieces together and provide you with more meaningful feedback.

I learned sooooo much from all of you, he seemed surprised that he didnt have to explaiin it all to me. He is even having me just pick up the medicine without a visit, he must have confidence that I know what I am doing. This is making me nervous because he is giving me lysodren (or mitotane) in a gel or liquid form? I haven't picked it up yet, so I don't know the dosing yet. The vet assistant who called me thought it was 1ml. I haven't heard anyone mention this on the forum and wondering if anyone has used this before. I was all studied up on the tablets and then this thru me for a loop.

I used liquid lysodren the first time I loaded my second cushdog, Jojo. It did the job but it got gunked up near the bottom of the vial. That made me uncomfortable so when it came time for a refill, we switched to a compounded capsule.

I believe the 1ml the vet tech was referring to is a syringe measurement. For instance, Jojo loaded on 100mg twice daily. In his case 1ml (full syringe) was 100mg so he would get .5ml twice a day with meals. Can you verify with your vet as to the actual mg dose?

I did print out the Lysodren loading instructions so I feel fairly comfortable with what to watch for.

Good for you. Those instructions came in real handy for me more than once. When loading with lysodren, prednisone is an absolute necessity so do not start loading without it.

We'll be here to help you in any way we can.



Glynda
P.S. I see that Kim posted well before I did. I'm at work and get interrupted frequently. Sorry for any duplication.
  #9  
Old 04-22-2009, 05:34 PM
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ventilate ventilate is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Hi, I wanted to welcome you as well. Sounds like you did your homework, a couple things I want to mention is first the loading instructions are excellent but what I do want to reinterate is that anything that makes you go "ummmm" and think thats odd could be the sign of loading, it can be very subtle, just a hesitation while eating instead of just going head down butt up and eating, a pause, not grabbing a treat out of your hand but sniffing it first things like that, my dog left a few kibble for her boyfriend and didnt wake me up that night to go out to pee.
As well when you go to pick up the meds, if it not written on the bottle be sure to ask what the concentration is how much lysodren in the 1 cc of liquid. it will not be pure lysodren it will be for example 15 mg in 1 cc we need to know the mg of lysodren as well as the ccs you are giving and the wt of your dog. As well be sure the vet gives you prednisone in case of inadvertant overload you want to have some on hand just in case, you know the old saying if you have it you will not need it.
Good luck and please do post the results when you get them
Sharon
  #10  
Old 04-23-2009, 08:13 AM
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Kallie'smom Kallie'smom is offline
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Default Re: Hello, I am new here, Kallie just diagnosed

Thank you for the welcome and words of encouragement.

MJ - Thanks for saying hi and so sorry to hear about Rusty.

Kim - I have 2 other (medium sized dogs) and they all drink out of the same 2water bowls!! I do usually pay attention to how much Kallie is drinking anyway so I will probably be able to tell if she goes to the bowl less or spends less time actually drinking. Sometimes she drinks what seems like a full minute! She gets up every night around midnight for a drink too. The vet is having me give Kallie melatonin, to help her sleep and maybe help grow some hair back? Does anyone know if that is okay to give her? So far I haven't read anything bad about it.

Glynda - I will get the test results this afternoon - I will be picking up the medicine and speaking to the vet. Hopefully I will understand the numbers to be able to post them correctly.

Sharon - Kallie has always coked her food down as fast as she can so hopefully that will be the first thing I notice is her hesitation. She acts like there are 10 dogs behind her trying to get her food!! I even divide her food up (during each meal) and don't give it to her all at once because she cokes on it otherwise. Since the drinking will be harder to monitor I'm hoping the food will be my indicator.

Thank you all so much - I'll post the results as soon as I can and probably compare with other results posted here so I can learn what all the numbers mean.

Tammy
 

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