Re: Patty's Ali - seizures are back
Hi Patty, I think the weight issue may be due to the tumor as weight loss with cancer..... pretty much go hand in hand. It seems like you are in stolen time as I don't think many other caregivers could have kept Ali alive till now. My mindset would be to try to keep her weight stable but not be overly alarmed at weight loss.
I have seen the way Docs and support staff change the way they talk to people at this stage. It is like they have done all they can and are now at the emotional support level and don't look deeper. You may have to break through that to have them help you figure out the decreased insulin needs.
I hope you get some answers, but fear you may very much be in uncharted waters.
Sending continued hopes for things to settle down.
Oh, just saw the pics! She does looks so much better with the hunch gone. I know it is so tough on you Patty and it feels as though stuff is flying out of control, but my goodness she looks great!
Tara
Hi Patty, I think the weight issue may be due to the tumor as weight loss with cancer..... pretty much go hand in hand. It seems like you are in stolen time as I don't think many other caregivers could have kept Ali alive till now. My mindset would be to try to keep her weight stable but not be overly alarmed at weight loss.
I have seen the way Docs and support staff change the way they talk to people at this stage. It is like they have done all they can and are now at the emotional support level and don't look deeper. You may have to break through that to have them help you figure out the decreased insulin needs.
I hope you get some answers, but fear you may very much be in uncharted waters.
Sending continued hopes for things to settle down.
Oh, just saw the pics! She does looks so much better with the hunch gone. I know it is so tough on you Patty and it feels as though stuff is flying out of control, but my goodness she looks great!
Tara
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