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Old 04-23-2009, 04:18 PM
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4Mikeydog 4Mikeydog is offline
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Join Date: Apr 2009
Location: New Jersey
Posts: 10
Default Re: Mikey no longer doing well on Trilostane

Hi Leslie,

Thanks so much for your support. Mikey has had issues with shaking as well from Trilostane in the past, but a reduction in dosage seemed to have helped.
I am eagerly awaiting a reply from Dr. Oliver, but I haven't heard from him yet. I hope he writes back.
I know a change in treatment is imminent but I really want to know how to go about making this change with the least amount of risk
I am so worried...But as you all know too well..we must be strong and educated for our babies! They need us to be educated and strong to be their advocates!
Hopefully, we will have a strategy in place soon!

with best wishes,
Dorothy and Mikey